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Aspergers With Autism Spectrum Disorder; Female Asperger’s Syndrome In Undiagnosed Women
83Undiagnosed women, within a world of autism
spectrum disorder, cause all sorts of lifetime difficulties. With a diagnosis, come coping mechanisms,
understanding and support. However,
more women and girls are being diagnosed but for a sub-culture of 40 plus women
– they are lost. They are the
undiagnosed Asperger’s syndrome women.
They can’t make up for a lifetime. Here, in this article, you will find one of their accounts. This generation and the generations that preceeded them were the lost generation - the misunderstood.
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Where's The Party? In My Head! Asperger's Bad Head Day??
I always said the party was in my head. There’s lots going on in there – you should join me. This is my magic box of tricks that I can open whenever I want to. Within my mind there is joy, sorrow, pain, love and anger. Many thoughts and many memories that can be revisited and viewed – yes I can relive them and feel the feelings just as if I go back in time. I can spend hours' just dreaming and allowing free thought. It is my safe haven but sometimes it is my nightmare. I can be kept awake thinking about my stupidity and what others might think of me. I guess I am a little paranoid and fearful.
I am compulsive, highly intelligent, depressive, incredibly immature and really quite weird in social situations. Didn’t Ruby Simone mention this in her book ‘Aspiegirls’? – Click on Autism Spectrum Disorder:: Asperger’s Syndrome:: Women and Girls for more.
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Half Price, But Can't See The Wood for the Trees!
Shopping
today was a nightmare. Although the
supermarket wasn’t crowded, I somehow, managed to find other shoppers. Or did they find me? Confused?
You and me both! All supermarkets are evil anyway! Why? Click Here.
The fish counter advertised ‘Two offers per week – half price’. I couldn’t find the two offers or the words to express this. My semantics were awful – I was having one of those ‘hard work’ days – again! After jumbling my words, I noticed a massive sign with the special offers splashed on a 3-metered board – what a fool! I stumbled my words and embarrassingly apologised – it wasn’t the smoked salmon this week then! How incredibly stupid of me not to notice the obvious!
Asperger Women Are Drawn to Psychology, Teaching and Social Working Professions
Both Rudy Simone and Dr Tony Attwood, say this is typical for a female with Asperger’s Syndrome. Just as they have both highlighted that many undiagnosed Aspie women are of my age group too. I am 42 years old but to meet me, you would think I was a lot younger. My attitude can be very child-like and immature. And yet I am very academic.
I obtained an Honours Degree in Psychology, a Diploma in Health and Social Welfare – both from the Open University (distance learning is great for social isolates and it is through this that I thrived!) - and a Certificate in Further Education. I found the class room environment quite hard – the social stuff made me quite, err… Aspie! What do I mean by this? Well, I get a fuzzy head, become clumsy and dominate the classroom with ‘know it all’ answers. These are nerves, you see. I am trying too hard to please. I am desperate to be liked, but you know, no one likes a ‘know all’, do they? However, I know this, but I just can’t stop myself!
What typically happens in these relationships, are that people latch onto me, initially but quickly drop me as they establish relationships with others. It is like I am a link until someone better comes along. Then I become the butt of ridicule.
It is funny how Dr Attwood – Autism Spectrum Disorder:: Asperger’s Syndrome:: Women, Girls & Dr Attwood
- suggests that many Asperger women become psychologists, teachers and social workers… I seem to fit in all these brackets 100%. It is also odd that both Ruby Simone – Autism Spectrum Disorder:: Asperger’s Syndrome:: Women and Girls - and the Doctor highlight a lack of self-esteem and being vulnerable to sexual predators when young. In both cases, I tick the boxes. Read my story ‘The Hunted Fox’ and ‘Child Molestation: Social Systems Abuse Victims’? Well, these aren’t about someone else – they are my stories (but don’t tell anyone, will you?).
Learning Psychology Helped Me Understand People!
My interest in psychology stems back from childhood. I was always in a perpetual dream state. As I wondered home, I can remember always asking myself why… why didn’t I have any friends and why didn’t anyone like me? So through psychology, I learned about human behaviour – an answer that I sought for ‘why’? I have worked with people with severe learning difficulties and challenging behaviour, nursing and presently volunteer to drive patients to their radiotherapy appointments for their cancer treatments. I, therefore, help people to live and support them through a difficult time. I am told that I should be a councillor – I use the ideas of client centred therapy, which I learned during my studies – if you want to know more click Psychology 101: Client Centered Therapy.
Autism Spectrum Disorder - Interesting Course Work
I couldn’t read and write until I was 10 years old and no one could teach me the time. I learned that by working it out myself from simple subtraction on a digital clock face. In fact, I failed my 11+ at 11 but by the time I was 12 passed with distinction! Work that one out, eh?! When I was being taught to read, for example, I was told that the ‘e’ at the end of the word made it longer. On observing, I could see that an additional ‘e’ would change a four-letter word into a 5-letter word, so yes, it did make it longer. If you want to learn more about I.Q., please click on Psychology 101: What Is Intelligence?
People with Asperger’s syndrome take things literally – I should know that, I have a son that was diagnosed in 2004 with Asperger’s – Click for more: The Story of Daniel - My Asperger's Autistic Son. Autism spectrum disorders was something that came up in my course work when I was reading psychology. I knew from that moment on what was wrong (or right?) with my son and I. However, it is too late for me, but not for Daniel.
Asperger's Syndrome - A Family Epidemic
Interestingly, my husband is an undiagnosed Asperger's
syndrome nurse – through knowing about our son, he has identified his oddness
too. My father is another and my
husband’s father is one too (although, I would never tell him – he deals with
things in his own way and I don’t think he would be accepting of it), so we are
all rather odd! They say it can be
genetic and my grandmother used to tell my mother how, as a child, she just
used to stand in the playground and watch the children play – she never
participated! Maybe she was one
too? She certainly was an isolate. It certainly is a family epidemic with us!
So, how do I manage to ‘fake’ social interaction, as Simone says? I learned to act from an early age. I pretended to be someone else and this helped me. However, you get found out in the end. It is impossible to act all of the time.
Typical Asperger's Syndrome - Lost Women
So I am a round block in a round hole in the realms of autism spectrum disorder. I think literally and have an amazing imagination – the party is in my head! I am truthful (which doesn’t always go down well in society), genuine and love the deepest love. I can lack empathy and come over as cold sometimes – but can play the part well enough to hide this coldness from others when needed. I am one of those undiagnosed women - one of the lost women that Rudy Simone and Dr Tony Attwood’s talks about. Simone says that diagnosis and support makes a difference between living a fuller life as opposed to one that is a struggle. Life has always been a struggle for me, so what use is an Asperger’s syndrome diagnosis? I can’t think of what support will help me further but only to substantiate what I already know to be true.
© This work is covered under Creative Commons License
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I fall into some kind of category...I know I am not normal...or at least in the sense of the world. Thankyou for giving details...that helps to understand what Aspergers is.
aw none of us are normal, some of us just don't get the help we nee need, nice one.
I know. I know.
we should have sympathy for them & give them moral support to get out from their suffering.
To have Aspergers Syndrome makes you different
To be different in this world we live in is hard and traumatic.
The hoards of so called normal people attack you, phyically and mentally, when you are a child in school. When you become an adult the same thing happens in the work enviroment.
I am different, I have Aspergers Syndrome. I am a 53 year old female. I knew I was different when I was 3 years old. I went through hell in schools and in jobs until I was 30 years old. Then I decided I was not 'playing the game' anymore. I am me and that's what they get, like it or not. It is their problem, not mine anymore.
I was blessed with parents who allowed me to be me from the age of 6. Why? Because we all know now that my father has AS too. I have one brother who is AS and 3 sisters who have AS too in a milder form. There is also 2 nieces and 2 nephews with the condition. Our family is different but we are together and we understand each other.
Thanks for the hub
There is more and more research that links many learning and developmental difficulties to poor communication and synchronisation between the two brain halves. An effective way of improving the processing functions in the brain is to listen to specially altered sound or music through headphones as pioneered by Dr. Alfred Tomatis (Tomatis method) and Dr. Guy Bérard (Auditory Integration Training - AIT).
Now there is a new Sound Therapy Programme which has been specifically developed with the aim to improve sensory processing, interhemispheric integration and cognitive functioning and it is entirely free to download and use at home. It has helped many children and adults with a wide range of learning and developmental difficulties, ranging from dyslexia, dyspraxia and attention deficit/hyperactivity disorder to sensory processing disorders and autism. It is not a cure or medical intervention, but a structured training programme that can help alleviate some of the debilitating effects that these conditions can have on speech and physical ability, daily behaviour, emotional well-being and educational or work performance.
Check out the Free Sound Therapy Home Programme from Sensory Activation Solutions. There is no catch, it's absolutely free and most importantly often effective. Find it at: http://www.uk.sascentre.com/uk_free.html.
Isn't Attwood wonderful? I've heard him speak in person: funny, and dead-on accurate. Thanks, Shaz, for your story. Why can't we all just accept each other for what we are? Either we "have" some "condition" or we are eccentric. I truly believe our personalities all originate from neurological settings we're born with. People have more similarities than differences - we just have to know how to interpret each other's behavior. I am working on some hubs addressing this very subject. Thanks to you and your readers for some helpful insight.
Shaz - THANK YOU for your "intense" response. I LOVE the way you describe your difficulty getting out in words what you are thinking in your head. And the dead-on accurate way you explain why we ask for summarizies and deeply rely on people to follow through on verbal commitments. You've helped me a LOT with your feedback. My thought for you is: Even if you don't have an Official Diagnosis, it's OK to ask for what you need. Good luck.
Hello all. Thank you Shaz for this wonderful page. I just learned I had Asperger's this week so it's all rather new for me. But hearing that I had it made my whole life suddenly click into place.
I too have bad head days (I will have to borrow that line from you Shaz) and become overwhelmed with whether I navigated iteractions appropriately. Did I talk to much? Why did I interrupt that person? Why did I act weird in that meeting when they asked me what I thought? What I thought was I was in ill-defined trouble with the adults (I'm 41, btw) and that I shouldn't speak.
Since I didn't know I had it, the diagnosis made a world of difference to me. I no longer was different from the rest of the planet (having long since stopped trying to tell people something felt different and being told in return "Oh, everybody feels that way sometimes.") I long suspected my Father has it and my therapist confirmed that it sounds like he does, although much worse than me.
Hey there shaz,
Creepy a full family of Aspies, in my case its rather different, Brother with ADHD and a Bipolar mom.
Anyways, the world is a vast place forr differences to grow, luckly we've been able to keep it together.
Nice article =) Although your writing seems kind of, weirdly structured, its fun to read :P I can imagine your head sort of like a Magician's box with stuff floating everywhere :P
Fun to read this was =)
Greetings
This was a great read Shaz - I was gripped! I'm also kinda weird and when I recently took an online autism test (on the advice of my 17 year old daughter!) I scored incredibly high. I have also studied psychology and have done social work so maybe I fit the bill in more than one way. Nearing 40 myself I don't think I'll ever have a diagnosis, but then again I'm not sure I want one! I appreciate my ability to think creatively and concentrate so hard that everything else is blocked out - not sure anyone else does, but hey we can't all be the same can we? Thanks for your honesty and well written article :)
Nice hub. I grew up with undiagnosed AS too
My husband complains that I'm always on the computer!
My son has Asperger's. I think I have Asperger's. I also think my mother had Asperger's. She committed suicide.
I don't think Asperger's is a disorder at all I think it's a benefit! I am a male who was diagnosed with asperger's. I love the fact that I stim and love objects more than people. What's curious is that Aspy women are drawn to psychology...
Great article. You have amazing insight. Thanks for sharing this hub.
Yes it sure does. Have a fabulous weekend.
I was diagnosed at 31 when I realized through my own studies and research I has aspergers syndrome
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CassidyS 2 years ago
Nice hub and very informative! I have social anxiety, but don't quite fit the profile for aspergers. It sounds like you're doing a great job not only with your family but helping others too.